Phantastic Phriday ... with a Twist

USUALLY on Phriday I include this Disclaimer....

*** DISCLAIMER: In honor of it being Phriday, and in rephusal to submit to boredom, I have decided that the Letter F shall phrom here on out be replaced with a PH (except phor in pictures, which I have no control over)***

Today however, I am not going to abide by my own rules. * GASP * But I have something very important to post about today.

Tomorrow is the beginning of Batten Awareness Days. Consider this your Personal Invitation!!!

Oh? What? You didn't know what Batten is? Yeah, unfortunately neither did my family when my nephew Jacob, now 6 years old, was diagnosed with it. Jacob has been diagnosed with a rare degenerative disease called Neuronal Ceroid-Lipofuscinoses (NCL). Also referred to as Batten Disease. It is believed that he has an unknown variant of the late infantile form (LINCL). Currently there is no cure for this and Jacob is now considered terminally ill. He is unlikely to make to the age of 12 years old.



Although it is unlikely that they will find a cure in time to help Jacob, our family is doing everything we can to raise awareness about this disease to help other families with children who are battling the same illness. PLEASE take a moment to look at their website and become a fan of his page as well as share it with someone you know to get the word out there.

Information Overload

Lots to cover here on this EARLY Sunday morning. First, a question for you. Can you explain how on school mornings I can't seem to wake up until I've hit snooze 3 times but on Saturday's and Sundays I can't seem to sleep in past 6:30AM, even though my alarm is set for 7AM?

Well it's the last day of May. How fast it flew by, almost faster than I hit the snooze button on a weekday, but not QUITE that fast. Overall it was a rather pleasant month. (Considering my favorite guy won American Idol and all)

In the lovely month of may I finished editing my book, started sending out queries, got one full Manuscript request, turned a year older, got some great birthday gifts, got MSG Poisoning and found the best treasure at Big Lots during our 'Great Deal' excursion, the Method Aroma Pill - Fresh Cut Grass Scented!!!



I also want to point out the top 5 blogs this month. (Because it makes me feel speshal!)

1. My Big News was a Big Hit! (I was pretty excited too!!!)

2. Phantastic Phriday Contest. YAY! (Although I still feel like not everyone participated! Did you? If not you better!!!)

3. Belated (and possibly my favorite) Birthday Present (hehehe)

4. Feeling Victorious (A big day for me...although I'm still waiting to hear back)

5. Oh No She Didn't! (Surprisingly my Memorial Day weekend was interesting???)

Big things to look out for in June are as follows...

* More updates to www.marybethsmith.com (Got some great content going up soon!)

* Hopefully more MS requests!

* The Last Day of School!!

* A Big Event on June 6th and 7th called Batten Awareness Day

And MUCH MUCH MORE!!!

I hope everyone has a Wonderful Sunday afternoon. Can't wait to see you all in June!

(By the way, don't forget to vote for me over on the side there for the Blogger's Choice Awards !!!)